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Science of Stigma Reduction: New Directions for Research to Improve Health

The Science of Stigma Reduction: New Directions for Research to Improve Health, a project coordinated by Fogarty's Center for Global Health Studies (CGHS), convenes researchers, policymakers and program implementers from the U.S. and low- and middle-income countries (LMICs) who focus on reducing health-related stigma across disease areas, populations and settings.

Context

Silhouette of person walking through vertical blinds toward a bright light. Courtesy of NIH Medical Arts / Thinkstock

Stigma is a major cause of discrimination in health care settings across the globe. Stigmatized individuals can be excluded from effective or quality treatment and care, and may be subject to human rights abuses, which in turn can lead to risky health care seeking behavior. Both public stigma and self-stigma can play substantial roles in how health services are sought, accessed and delivered for many diseases and conditions. Stigmatizing attitudes often stem from fear due to a lack of knowledge about a particular disease or illness - a problem that can be exacerbated in LMICs.

Science of Stigma Reduction Workshop - June 2017

Large group of workshop attendees pose for a photo. Photo courtesy of NIHResearchers, policymakers and program implementers gathered at NIH for The Science of Stigma Reduction.

In June 2017, CGHS hosted the workshop The Science of Stigma Reduction: New Directions for Research to Improve Health" at NIH. The 3-day event convened U.S. and LMIC researchers, policymakers and program implementers, with a focus on reducing health-related stigma.

An article collection published in BioMed Central resulting from the workshop details case studies, articulates lessons learned, illustrates partnership strategies and sets forth key research priorities. The workshop also expects to inform NIH investments and lay the groundwork for new partnerships. It has already informed a newly established Fogarty program, Reducing Stigma to Improve HIV/AIDS Prevention, Treatment and Care in LMICs.

Stigma Research Training Institute - June 2021

Fogarty's CGHS hosted a two-week virtual training for 51 U.S. and LMIC early- to mid-career investigators in June 2021 to build research capacity for global health-related stigma research. Through a combination of didactic, panel discussion and small group sessions run by stigma research experts, the Training Institute provided trainees with the knowledge and resources to understand how to apply novel and cross-cutting stigma methodologies and framework to research, identify and build partnerships with diverse stakeholders to extend the research of work, and conduct appropriate, high-quality stigma research.

Background

In 2001, Fogarty launched the Stigma and Global Health Research program with partners across NIH and the U.S. government, and convened a corresponding international conference. Fogarty's Global Brain Disorders Research program currently encourages stigma-related research. Other Institutes and Centers across NIH have issued funding opportunity announcements on assessing the role of and reducing stigma.

Partners

The following entities at NIH are partners on the project:

  • National Institute of Mental Health (NIMH)
  • NIH Office of the Director
    • NIH Sexual and Gender Minority Research Office (SGMRO)
    • NIH Office of Behavioral and Social Sciences Research (OBSSR)
  • National Cancer Institute (NCI)
  • National Institute on Drug Abuse (NIDA)
  • National Institute of Neurological Disorders and Stroke (NINDS)
  • National Institute on Alcohol Abuse and Alcoholism (NIAAA)
  • National Institute of Nursing Research (NINR)

Inquiries

Arianne Malekzadeh, M.A.
Global Health Research and Policy Analyst (Contractor)
Fogarty Division of International Science Policy, Planning and Evaluation
Email: arianne.malekzadeh@nih.gov

Updated June 2021