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Full Award: Child and Family Consequences of Congenital Zika Syndrome in Brazil
The following grant was awarded by, is supported by, is administered by or is in partnership with the Fogarty International Center at the U.S. National Institutes of Health (NIH).
Funding Fogarty Program
Global Brain Disorders Research
Project Information in NIH RePORTER
Child and Family Consequences of Congenital Zika Syndrome in Brazil
Principal Institution
Research Triangle Institute
Principal Investigator(s) (PI)
Bailey, Donald B; Ventura, Camila; Wheeler, Anne Caroline
Project Contact Information
Email: dbailey@rti.org
Year(s) Awarded
2017-2023
Country
Brazil
Collaborators
Altino Ventura Foundation
NIH Partners
NICHD
Project Description
Capitalizing on a partnership with the Altino Ventura Foundation (FAV), one of the few institutions providing intensive intervention and surveillance to children with congenital Zika syndrome (CZS) and their families, we will enroll and follow the development of 240 affected babies. This project will be the first comprehensive longitudinal study of early development in providing an understanding of the evolving natural history of CZS and baseline data for comparing impact in other populations or for examining the effects of future treatment programs. We will provide the first examination of families and how they adapt to the significant caregiving demands imposed by CZS and explore the impact of service access and support on outcomes for children and their caregivers.
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